Three more days until Glizza is gone. Glizza has been a wonderful person to spend the time with. In the last 20 months, Glizza and I have shared many experiences. Some experiences you would never believe! We're going to miss Glizza alot!
On Monday, I met with Corey my speech therapist and Bruce, the DynaVox specialist. A DynaVox is an AAC (augumentative and alternative communication) device which will help me communicate when I am no longer able to speak. The DynaVox is the size of my computer and will be fitted on my powerchair. It is both a communication device as well as a computer. I will be able to put my own messages and phrases that I often say into the DynaVox and I will also use my own voice. As you can see, one has to be proactive in getting the needed equipment before the disability sets in. Since I can no longer move my hands to type, I will be using a headmouse to control my computer and DynaVox as I do now with my own computer. So, in approximately 6 to 8 weeks, I will be getting the Dynavox and start to practice.
Yesterday was a typical physical therapy day. Following physical therapy, Glizza and I met up with Malia, Spike, Kathy Q. and Peggy and attended a movie at Kahala Mall. What a nice outting!After the movie I met Jan at the monthly ALS support group meeting, which is held at Queens Medical Center. At the ALS Support Group, families affected by this disease come together to support each other and share their stories on how ALS affects their lives. The support group led by Divina, helps to educate families of the disease and helps families find resources on care. It has been very helpful to us as we journey through this disease process.
We continue to interview and meet new caregivers to replace Glizza. We continue to look for at least 3 caregivers to fill Glizza's place. This has been a difficult and challenging job for me as I will have to teach each one how to care for me. I look forward to the challenge.
The applications for Vi's Adventure Trek and Run are all out. We will also be posting the race application to this site. PJ, our race director, is still looking for volunteers.
Godnight Spike! Goodnight Bella! Nana loves you!
Goodnight Daniel, who is in Bali!
Aloha, Vi
P.S. Tomorrow is swim day so if you want to come we're at Kaimana Beach at 9:30am. Look for the beach wheelchair sitting empty in the sand, we'll be in the water!
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